The
Beginning
At
the end of the year 1998, 12 families, each having a child with disability,
started to meet in each other's homes in order to share their experiences,
including thoughts, therapies, knowledge about disability and plans
for the future. During these meetings they were joined by a number of
professionals who at the time were providing services to these families'
children. Everyone welcomed this collaboration between parents and professionals,
especially since the children were benefiting from it. Therefore, an
agreement was reached to officially establish a foundation promoting
this collaboration and interaction. This occurred in the month of January
of the following year (1999).
Today
Since
the launch, the services offered by the Foundation have continued to
expand. Nowadays, services are being offered to nearly a hundred (100)
persons with disability ranging from infants to adults. One of the main
principles of Equal Partners is that the services offered are personalized
to each and every individual and family. Also, the support is offered
at home, in the school and in the community, thus allowing the children
to remain in their everyday reality.
The committee of the Foundation is made up of nine (9) individuals representing
parents and professionals, with the former always holding the majority
in order to safeguard the interest of the families. This committee meets
at least once a fortnight at our administration office in Floriana.
The
Philosphy
The
philosophy upon which Equal Partners is built upon is derived from the
needs and aspirations of parents of children with disabilities. It provides
the Foundation with direction as its aim is to give people with disability
an independent life in an inclusive society. The foundation's principles
are built around three main objectives:
a.
Cooperation between parents, people with a disability and professionals:
Parents have an active role in the designing of the services. They approve
the programme designed in continuous consultation with the professionals,
a programme that is often developed in these families' kitchens. This
'round-the-kitchen-table policy' places parents' wishes on the forefront,
and in any case, there is no one who knows the children more than the
parents do.
b. Individualised
support and only where it is required: Each and every person is unique
and every person has the right to live in a community. Therefore, especially
in the case of people with disability, it is appalling when these facts
are ignored. Equal Partners recognizes the individuality of every person
by developing an individualized programme for every member. The Foundation
also emphasizes the community by providing support where it is required:
at home, at school, at catechism classes, at scouts, at the work place,
in places of leisure and recreation, etc. Equal Partners emphasizes
that the support belongs to the individual and not vice-versa. To isolate
and exclude a human being from his/her surroundings on the basis of
having to provide support is a form of alienation.
c. Working
towards an inclusive society: We chose the name 'Equal Partners' because
the concept of equal partnership between people who are so diverse from
one another is what leads to an inclusive society. It is not enough
to give a person support. We need to create an awareness that goes beyond
fund-raising. We need to educate people professionally at a tertiary
level. Above all we need to change the mentality of people who tend
to separate the person from the disability, to try and 'cure' the disability
while forgetting the person behind it.